Scoliosis is a condition that affects people from all walks of life. Countless people with scoliosis use social media, blogs and other media outlets to share their personal experiences and offer support to others.
Here are just a few scoliosis quotes from people who have dealt with their condition in the public eye:
Celebrities
A number of well-known public figures have used their positions of influence to raise awareness about scoliosis and to be positive role models for others with the condition.
Princess Eugenie of York, British Royal
Here’s what Princess Eugenie said after her wedding to Jack Brooksbank, during which she wore a dress that showed off the scar from her spinal fusion surgery:
“I believe scars are like memories that tell a story on your body, that remind you of how strong you had to be, and that you survived to talk about it. Your scars are a way of communicating, and sharing a trauma can be healing in so many ways – it can release the stigma you might have given to yourself, and by talking about it, you can show people how they can heal too.”
Kurt Cobain, American Musician
Here is an excerpt from an interview that the troubled Nirvana frontman gave in 1993:
“When I stand, everything is sideways, it’s weird…I go to a chiropractor every once in a while…most people have a small curvature in their spine anyhow, though some people have it really bad and have to wear metal braces. It gives me back pain all the time. That really adds the pain to our music. It really does. I’m kind of grateful for it.”
Usain Bolt, Jamaican Athlete
Here’s what Bolt had to say when asked about his scoliosis in a 2011 interview with ESPN:
“When I was younger it wasn’t really a problem. But you grow and it gets worse. My spine’s really curved bad…but if I keep my core and back strong, the scoliosis doesn’t really bother me. So I don’t have to worry about it as long as I work hard.”
See Also: Famous People with Scoliosis
Scoliosis Influencers
We at Scoliosis SOS have been lucky enough to speak with a number of inspiring people who are working to raise awareness of scoliosis and provide support for those who have it. Here is some of their advice for people with scoliosis:
Leah Stoltz, Founder of Curvy Girls
“Talk about how you’re feeling! Don’t keep it bundled inside. Find support: a trusted friend, a parent, an online forum, Instagram page, Facebook group, book…there are so many ways to feel supported and to talk with other girls who are going though what you are going through.”
Read Full Interview >
Rachel Mulvaney, Vice President of Curvy Girls
“Throughout my bracing years, I was told that my chronic back pain did not exist because scoliosis ‘does not cause any pain’. I was one of many patients who was spoken to in this way. But after learning a programme [the Schroth method] that both validated and eliminated my pain, I was determined to spread the word. I wanted to make sure all Curvy Girl families had the opportunity to know that this treatment existed.”
Read Full Interview >
Louise Laurie, Scoliosis Blogger
“Every case is different, but I would say that mindset is everything. I used to feel so down about my back, but I’ve realised that having scoliosis does not have to hold you back – you can achieve anything you put your mind to.”
Read Full Interview >
@scolilife, Scoliosis Tweeter
“As cheesy as it sounds, things get better. When I was diagnosed, I thought my life was over – it was the biggest deal, and no matter what, everything seemed like bad news or just another complication to add to my growing list. But soon enough, you adjust to the brace. The X-rays become fun. The appointments become bonding time with your family. Your scoliosis becomes a point of pride rather than disappointment, and you become stronger and more independent because of it.”
Read Full Interview >
Chloe Donhou, Spinal Fusion Patient
Chloe underwent spinal fusion surgery live on Channel 5 earlier this year, a spectacle that gave viewers a real insight into what scoliosis surgery actually entails. Here’s something she said after sitting for a painting that was featured on scoliosis blog The Curvy Truth:
“I have always felt the need to cover up my scoliosis as I hated the way my back looked. Wearing clothes was difficult as I felt they sat weirdly on my back. I became so annoyed with myself that I couldn’t just accept it, so I felt that having this piece [a painting of her back] done would allow me to see that it really isn’t that bad after all. The painting is now hung up on my bedroom wall and I see it every day. Seeing it all the time really allowed me to come to terms with it – I accept who I am and I love me for it!”
If you are suffering from scoliosis, don’t think you are alone. There are people all around who are willing to help and support you – for instance, take a look at our list of scoliosis support groups around the world.
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