People who suffer from Marfan syndrome experience problems with the connective tissues within their bodies; this affects the structure of their form and the support of their internal organs. In most cases, the sufferer will have inherited the condition from their mother or father, as the gene responsible for Marfan syndrome has a very high chance of being passed from parent to child.
Diagnosing this condition can be particularly difficult for medical professionals, as the symptoms often vary from person to person. While in many cases the symptoms are visible in childhood, the condition often remains unidentified until the patient’s teenage years, the process of diagnosis being made even more difficult by the rarity of the condition.
Due to its effect on the body’s tissues, Marfan syndrome can often cause problems with the body’s growth and development. One common side-effect of Marfan syndrome is scoliosis, as it can cause the spine to curve to the sides abnormally. Statistics have shown that more than 6 out of 10 Marfan syndrome sufferers will develop scoliosis, causing them to experience back pain, and even leading to breathing problems in severe cases.
What can Scoliosis SOS do to help?
As there is currently no cure for Marfan syndrome, it is important that the syndrome’s symptoms are managed in the best way possible in order to provide relief from pain and to reduce the risk of further complications. Although surgery is sometimes suggested as a solution for the symptoms of scoliosis, this is a fairly drastic form of treatment that comes with many risks to the patient. It also comes with a long healing time, which is an added inconvenience, particularly for younger patients.
At Scoliosis SOS, we take a different approach to treatment, using a variety of non-surgical therapies to deliver long-lasting results. Combining specially-devised exercises with osteopathic principals and other methods of treatment, the
ScolioGold programmes delivered at our clinic are able to provide substantial reductions in spinal curvature. They also allow our patients to continue their progress at home, allowing them to see continued progress and experience ongoing relief from pain.
If you’re a Marfan sufferer who has trouble dealing with the symptoms of scoliosis, please don’t hesitate to get in touch! You can find more details of our treatment courses here.
Many discussions about
scoliosis – and the
treatment of scoliosis in particular – centre on something called the
Cobb angle. The Cobb angle is among the most important indicators of scoliosis severity, and
Cobb angle reduction is the primary goal of the non-surgical
scoliosis treatment courses we deliver here at Scoliosis SOS.
Simply put, the Cobb angle is just a way of measuring the curve of a scoliosis sufferer’s spine. It is named after John Robert Cobb, an orthopaedic surgeon from the USA; Cobb was born in 1903, and he conducted extensive research into scoliosis when relatively little was known about the condition. He identified that only 1 in 10 scoliosis sufferers actually requires surgical treatment, and so he devised the Cobb angle as a straightforward means of determining whether or not a patient’s spinal curvature is severe enough to necessitate surgery.
Cobb angle examples
The X-rays below show Cobb angle measurements for five different scoliosis sufferers (all of whom were treated here at the Scoliosis SOS Clinic). The patients’ ages range from 7 to 32 years old.
More Cobb angle examples can be found
here.
Using the Cobb angle to assess treatment needs
Scoliosis can only be diagnosed (and its severity assessed) by an experienced practitioner. However, here is a rough guide to what the Cobb angle means:
- A Cobb angle of less than 10° is entirely normal – there is no such thing as a perfectly straight spine, and everyone will have some slight deviation in their spinal alignment.
- 10° is generally accepted as the threshold for determining if somebody has scoliosis. Scoliosis will not be given as a diagnosis unless the patient’s Cobb angle is 10° or more.
- When the Cobb angle is between 20° and 40°, a back brace is usually recommended; back braces come in many different shapes and sizes, and some are worn only at night. However, some patients may be prescribed a brace at 15° or at 50° – it all depends on the hospital that’s administering treatment.
- How large does a patient’s Cobb angle need to be before an orthopaedic surgeon will recommend surgery? The answer varies from country to country and is often influenced by whether the patient is already wearing a brace and/or undergoing scoliosis-specific physiotherapy. In the UK, the threshold is often 40°; in continental Europe, it’s more frequently 50°.
- 12° to 120°: This is the range of Cobb angles we treat using our ScolioGold therapy programme (although the majority of our patients exhibit curves of between 20° and 65°).
Click below to see how our treatment courses can help to reduce the Cobb angle or contact us now to book an initial consultation for yourself or a family member.