Congenital Scoliosis
 
The most common form of scoliosis is idiopathic scoliosis, which usually develops during adolescence and has no known cause (although science is gradually getting closer to solving that mystery). The vast majority of idiopathic scoliosis patients are diagnosed between the ages of 10 and 18; as a general rule, the characteristic spinal curve does not develop until the onset of puberty, when the body goes through a rapid growth spurt.
 
However, some people have a type of scoliosis that sets in far earlier – from birth, in fact. This is called congenital scoliosis.

What is congenital scoliosis?

Congenital scoliosis is a type of scoliosis that is present from birth. If a baby is born with a spine that curves to one side, they are said to have congenital scoliosis.
 
Congenital scoliosis is caused by irregular development of the bones in the spine while the baby is in the womb. In some cases, congenital scoliosis occurs because one or more vertebrae did not form properly, although a spinal curve can also arise because multiple vertebrae are joined together.

How to spot congenital scoliosis

The symptoms of congenital scoliosis are similar to the symptoms of idiopathic or any other type of scoliosis (although they may be somewhat harder to spot in an infant or small child):
  • Uneven hips and/or shoulders
  • Rib cage more prominent on one side than the other
  • The patient appears to lean to one side
  • Clothes do not fit properly
  • Numbness, loss of coordination or weakness

Is congenital scoliosis painful?

Every congenital scoliosis patient has a different experience of the condition, and that applies to children born with scoliosis just as much as it applies to those who develop the condition later on. Some scoliosis patients do experience pain, reduced mobility, and/or compromised breathing, but these symptoms are relatively uncommon, especially in their more severe forms.
 
In cases where congenital scoliosis is linked to a problem with the spinal cord / nervous system, the patient may experience reduced coordination, reduced strength, and/or a feeling of numbness. Again, though, such cases are quite rare.

Treating congenital scoliosis

Scoliosis can be treated in a number of different ways, and congenital scoliosis is no exception. If the patient is still very young, some doctors may recommend simply waiting and monitoring their condition to see whether or not the spinal curve corrects itself as the child grows. This is usually the recommended treatment for congenital scoliosis curves less than 25°.
 
If congenital scoliosis worsens over time, some doctors may recommend bracing to prevent further deterioration. The brace puts pressure on the patient’s lower back, helping to straighten the spine. This can often be uncomfortable and inconvenient, especially for children who want to be able to run around and play restriction-free. 
 
In especially severe cases of congenital scoliosis may be referred for spinal fusion surgery, but this is a major operation and surgery is not usually the preferred treatment route when the patient is a child.
 
As with other forms of the condition, congenital scoliosis can be effectively managed via exercise-based physiotherapy. We have treated many young children here at the Scoliosis SOS Clinic, and we have seen some real transformations – just visit our Results (4-14 Years Old) page to see how effective our treatment courses are when it comes to reducing spinal curves.
 
If you would like to find out more about our treatment courses and how they can benefit congenital scoliosis patients, please call Scoliosis SOS on 0207 488 4428 or click here to book an initial consultation.
Scoliosis & Cerebral Palsy While the majority of scoliosis cases occur without any prominent connection to the sufferer’s overall health and lifestyle, there are several medical conditions which can lead to what is commonly known as neuromuscular scoliosis, or myopathic scoliosis. This is caused by abnormalities of the myoneural pathways of the body, and often leads to a more rapid progression of the spinal condition, due to existing weaknesses. One of the most commonly-associated conditions which can lead to myopathic scoliosis, is cerebral palsy: a neurological disorder which causes muscle weakness, uncontrolled body movements, and poor co-ordination, among other issues. Due to the neurological impact of cerebral palsy on an individual’s spinal muscles, the chances of developing myopathic scoliosis are increased by around 20% in these cases. Depending on the severity of the cerebral palsy, the chances of developing scoliosis can increase further still, with the rate increasing to almost 100% in bedridden children. The type of scoliosis caused by cerebral palsy differs from the more common idiopathic form in various ways, including:
  • The rate of progression  – As previously mentioned, the neurological impact of cerebral palsy can cause the severity of the spinal curve to progress far more rapidly, even once the patient has reached skeletal maturity.
  • The age of development – Patients with cerebral palsy will often develop scoliosis at a younger age.
  • Treatment – While bracing is commonly used to treat scoliosis, for both correction and prevention of progression, this is often deemed to be less effective in patients with cerebral palsy.

How is Scoliosis Treated in Patients With Cerebral Palsy?

As mentioned above, bracing is often deemed to be ineffectual in scoliosis sufferers with neurological disorders, which means that this treatment approach is usually ruled out straight away. Due to the progression of the curve, spinal surgery is often recommended as the primary form of treatment, although the goal is to delay this until the patient reaches an older age. Due to the additional complications posed by cerebral palsy, however, the planning and execution of this surgical procedure is often made far more difficult, due to the number of additional factors which must be taken into consideration before attempting surgery.

Can Scoliosis SOS Help?

While each individual case is completely unique, we aim to provide the best treatment possible to each of our patients, and have worked with countless individuals suffering from additional medical conditions in the past. When it comes to all forms of scoliosis, the prevention of progression is key, and is particularly important in those who show signs of scoliosis from a very young age. Over the years, we have treated patients from ages as young as 4, in order to provide these children with the ability to manage their condition and prevent deterioration at an early stage. For those who have already undergone spinal fusion due to the severity of their condition, we have also provided treatment to aid recovery and mobility, while reducing the levels of pain which are often experienced by post-op candidates. If you would like to find out more about the treatment options offered by Scoliosis SOS, then please feel free to get in touch with us today for more information. You can do so by filling in our contact form here, or by calling us on 0207 488 4428, to discuss your condition or to arrange an appointment.
How we helped a woman with tricuspid atresia to manage her spinal curve
Katrina
Congenital heart disease (CHD) can manifest itself in a number of different ways. For example, people born with tricuspid atresia – an absence of the heart’s tricuspid valve – frequently experience fatigue, shortness of breath, and cyanosis (where the skin assumes a bluish tinge due to poor circulation).
Pertinently for us here at the Scoliosis SOS Clinic, tricuspid atresia can also be accompanied by curvature of the spine. Some years ago (when our clinic was still located in Suffolk), we treated a woman named Katrina – pictured above – who suffered from both tricuspid atresia and scoliosis. Katrina, who was in her twenties at the time, had undergone spinal fusion surgery as a teenager in the hope that this would correct her spinal curve; however, she received no further treatment or physiotherapy after the operation, and her curve subsequently began to progress once again. By 2007, she was experiencing constant pain and difficulty walking. Her scoliosis was even affecting her lung capacity – particularly problematic when you’ve already got a heart condition.
Katrina had all but abandoned hope of overcoming her scoliosis, but our ScolioGold treatment programme proved to be an effective solution, succeeding where spinal fusion surgery had failed her. Our exercise-based course helped Katrina to manage her spinal condition and dramatically improve her quality of life – here’s what she herself said in an article for GUCH News (issue 58, published spring 2009):
“The course taught me how to manage my condition and to maintain my corrected posture without the help of a therapist…I now visit the clinic every 12 weeks for a refresher and to learn new exercises. I am able to speak to the therapists at any time if I need advice or have any problems.
“I am very lucky to have the clinic so close to me, however I advise anyone who has scoliosis and may be looking for further advice to ring the clinic and see what they can offer you…if you live far enough away they can provide self-catering accommodation nearby.”
– Katrina Clarke, ‘My Experience at the Scoliosis SOS Clinic’
Scoliosis can be caused by any number of different factors; in fact, very often, the cause is not even clear (this is known as idiopathic scoliosis). Scoliosis sufferers with congenital heart defects are just one subset of our diverse patient base, and we are capable of providing effective non-surgical treatment for a wide variety of different spinal conditions at any time of life.
To learn more about our ScolioGold treatment courses and book an initial consultation with Scoliosis SOS, please contact us today.
Although there is no cause for the curvature of the spine in that majority of cases we treat here at Scoliosis SOS, and in scoliosis patients in general, there are several medical conditions which can lead to the development of scoliosis. 
 
Today, we are focusing on one of the conditions which can lead to the development of scoliosis, namely, Guillain-Barré Syndrome. Many will not have heard of the condition previously, due to its rare and serious nature. It occurs when the immune system attacks part of the nervous system, and is often the result of a viral or bacterial infection.
 
One of the primary symptoms of Guillain-Barré is progressive muscle weakness, and a resulting loss in coordination. Although many sufferers of Guillain-Barré go on to recover from their condition, a lasting impact is often caused by this weakening of the muscles, which in some cases, can lead to the development of scoliosis. 
 
Such was the case for our previous patient Jonathan, who suffered with Guillain-Barré for a year, and was diagnosed with scoliosis shortly afterwards. Upon initial diagnosis, Jonathan was told he had a 19° curve and was given a corrective brace, but six months later he was told that this had progressed to a 38° curve.
 
Improved muscle strength and coordination are a huge part of our treatment process here at Scoliosis SOS, targeted by the inclusion of methods such as the PNF Technique, along with other elements of our ScolioGold programme. For this reason, our treatment approach can be incredibly beneficial for an individual who has been left weakened by the impact of Guillian-Barré, as is exemplified in Jonathan’s treatment video below:
 
 
If you would like to learn more about how we can aid the recovery of Guillian-Barre sufferers, and relieve symptoms of their scoliosis, please get in touch by calling 0207 488 4428, or by filling out our enquiry form here.
A couple of months ago, we shared the news that researchers at Hiroshima University in Japan had identified the gene responsible for causing idiopathic scoliosis to develop in certain people. Their findings were based on experiments conducted on zebrafish (a popular choice for genetic research, since they are genetically similar to humans and mutations can be introduced and observed with ease); now, further zebrafish research has yielded another huge clue as to the origins of idiopathic scoliosis in human beings. 
Zebrafish skeleton with scoliosis
Fish skeleton image from www.princeton.edu
This time around, the findings came not from Japan but from North America. On the 10th of June 2016, Science published a report compiled by researchers from Princeton University (USA) and the University of Toronto (Canda) – here are the two key implications of their findings:
  • Idiopathic scoliosis may be linked to the flow of fluid through the spinal column. The researchers bred zebrafish with a genetic mutation that affected cilia development in the ependymal cells lining their spinal canals. Cilia are tiny bristle-like protuberances that help to move fluid through the spine, but the mutated zebrafish developed damaged cilia, which disrupted the normal flow of cerebrospinal fluid (CSF). The fish with damaged cilia eventually developed idiopathic scoliosis, suggesting a strong link between CSF flow and spinal curvature.
  • The progression of scoliosis can be blocked. The researchers found that, by restoring cilia motility in the mutated zebrafish, they were able to prevent scoliosis from progressing. This was even true when the cilia were restored after the onset of scoliosis, suggesting that science may one day be able to provide a non-invasive, non-surgical means of stopping a curved spine from getting any worse.
This is clearly a big breakthrough – countless scoliosis sufferers have undergone surgery to combat their condition, but the results of this zebrafish study imply that there may eventually come a time when this is no longer necessary.
Of course, it may take many years to reach that stage. Genetic treatments take a long time to perfect, and it is currently not even known whether this research is translatable to humans who suffer from scoliosis. Still, if you suffer from scoliosis and you’re looking for an alternative to surgery in the here and now, you may wish to investigate the non-surgical treatment methods that we utilise here at Scoliosis SOS.
Based in London, the Scoliosis SOS Clinic specialises in providing effective, exercise-based treatments for scoliosis sufferers who do not wish to undergo surgery. Contact us now to arrange an initial consultation and find out whether our internationally-renowned treatment courses could help you.