Scoliosis (and its symptoms, such as chronic pain and reduced mobility) can have a huge impact on the lives of those affected by it. However, as many scoliosis sufferers will no doubt agree, it can make a huge difference simply to speak to other people who are suffering from the same condition.
With that in mind, here is a list of scoliosis support groups
(both online and offline) around the world. We will be updating this list periodically, so if you run or know of a scoliosis support group in your territory, please let us know via Twitter (@ScoliosisSOS
) and we will consider expanding our list accordingly.
Scoliosis Association (UK)
SAUK is a nationwide support organisation for scoliosis sufferers in the United Kingdom (and their families). They provide advice and information on the condition, and aim to raise awareness both within the healthcare industry and amongst the general public. Their helpline (see number above) is manned from 9am to 5.30pm every weekday, and it allows people to phone up and receive friendly guidance and support instantly.
National Scoliosis Foundation
Headquarterered in Massachusetts, the NSF is a nonprofit organisation that aims to help "children, parents, adults, and healthcare providers to understand the complexities of spinal deformities such as scoliosis." They offer numerous different types of support, including early screening programmes, advocacy / awareness initiatives, and numerous informative resources for scoliosis sufferers and their loved ones.
- Locations: Australia, Canada, Guyana, Hong Kong, Ireland, Israel, Kenya, Lebanon, Mexico, Morocco, Peru, South Africa, Sweden, Turkey, UAE, UK, USA
- Website: www.curvygirlsscoliosis.com
- Social Media: Facebook // Twitter // Instagram
Curvy Girls was founded in 2006 by a young scoliosis sufferer named Leah. It began as a small support group specifically aimed at children and young people with scoliosis, and it has now grown into an international success, with groups currently meeting in a dozen different countries on six continents across the globe (see list above).
Vereniging van scoliosepatiënten
This Dutch-language website (roughly translated, the name means 'Association of Scoliosis Patients') hosts a wide array of informative resources for scoliosis sufferers, as well as a forum where Dutch-speaking scoliosis patients can interact with and support each other.
Beyond A Curved Spine
Beyond A Curved Spine is a "scoliosis awareness hub" based in Lagos, Nigeria. They aim to raise awareness of the condition while also providing financial and emotional support to scoliosis patients who need it.
SupportGroups.com is a website that houses online support groups (forums) for a wide range of different conditions and life events, from depression and eating disorders to divorce, alcoholism, PTSD and more. Their dedicated scoliosis group is 17,800 members strong at time of writing, and the forum's open style encourages users to share their feelings and offer support and a friendly ear to fellow scoliotics.