People living with scoliosis

Just because you've been diagnosed with scoliosis, that doesn't necessarily mean you have to change the way you live. Even individuals with fairly pronounced spinal curves can enjoy a high quality of life as long as their condition is treated and their symptoms properly managed.

If you're concerned about the challenges that come with a curved spine, perhaps we can help to reassure you. Here are the stories of three people who know what living with scoliosis is really like - all of them have undergone treatment here at the Scoliosis SOS Clinic in London and their experiences hopefully demonstrate that, as problematic as this condition can be, it doesn't have to drastically alter your life!

Phoebe Kaniewska

15 years old // London

Phoebe was diagnosed with scoliosis as a pre-teen. When her mother noticed that her hips looked uneven, she went to the GP and - after being referred to a specialist - was told she had a 30-degree curve in her spine. The doctor thought she had finished growing, but when she returned a year later she had grown a lot more, and this had caused her scoliosis to progress by 15%.

Phoebe was told that spinal fusion surgery would reduce the visibility of her curves, but as she herself states in the video below, she "wasn't worried about anything to do with looks". She was, however, concerned about the pain that she experiencing; it wasn't too bad to begin with, occurring only when she bent down, but that occasional pain gradually progressed until was a big part of Phoebe's life. She was also concerned about the effect that scoliosis might have on some of her favourite activities - would her spinal curve limit her ability to row and run?

Phoebe came to the Scoliosis SOS Clinic for treatment and was pleased to find her pain beginning to recede. We are pleased to report that she is still a keen runner and rower, and when she does experience pain/tension as a result of her scoliosis, she finds that massage and Kinesio tape are great for relieving these symptoms.

Rowan Cottee

22 years old // Essex

Rowan first visited our clinic in 2012. He works as an IT technician, and thus spends a lot of time sitting at a desk. This can be bad for anybody's posture, but when you already have a curved spine, full-time desk work can be very problematic indeed.

For Rowan, one of the most important parts of living with scoliosis is concentrating on his posture. The treatment he received here at Scoliosis SOS made him a lot more aware of his posture, and he now makes sure to sit/stand up as straight as possible wherever he is. He returns to our clinic regularly to make sure he doesn't slip into any bad habits, and we've taught him a number of stretches and exercises to help him relieve aches and pains when they occur.

Carol Inskipp

68 years old // Cambridgeshire

Carol is a very enthusiastic hiker who frequently goes on treks in other parts of the world. She got in touch with Scoliosis SOS because she was suffering from what she describes as "conspicuous" scoliosis with "a lot of pain".

Scoliosis posed a number of problems for Carol, not least the possibility that she might have to hang up her walking boots. Her doctor informed her that, while she'd had a good run, it would not be a good idea for her to carry on putting stress on her body by walking miles and miles over rough terrain.

Here's what she had to say after completing a treatment course at our clinic:

"My pain disappeared, my back looked much better. Friends said so, family said so...the pain's gone."

When the above video was filmed, Carol had recently returned from a trek to Nepal, where she camped and used tree branches to help with her stretches!

Worried that scoliosis will have a big impact on your life? Contact Scoliosis SOS today to discuss your condition and arrange a consultation.